Gracie Lynn’s Story, a New Hampshire Healthy Families Member


[MUSIC] [JOANNE]: GRACIE HAD A TRAGIC ACCIDENT WHEN SHE WAS NINE MONTHS OLD, WHICH LED TO A VERY SERIOUS BRAIN INJURY. [TIM]: SHE HAS MANY CHALLENGES. HER BIGGEST OBSTACLES ARE HER SEIZURES. [JOANNE]: SHE WENT FROM HAVING ONE TYPE OF SEIZURE TO HAVING FIVE. [TIM]: SHE USED TO TALK BEFORE SHE STARTED HAVING THE SEIZURES. GRANTED IT WAS MINIMAL, BUT IT WAS WORDS. [JOANNE]: SHE ENDED UP GOING TO A CHILDREN’S REHAB CENTER. SHE SPENT FOUR YEARS THERE. THEY COULDN’T GIVE HER THE ATTENTION SHE NEEDED 24/7 BECAUSE HER SEIZURES ALSO INCREASED. WE STARTED BRINGING GRACIE HOME ON WEEKENDS, AND WHILE SHE WAS HERE, SHE WOULD BLOSSOM. [TIM]: YOU LOOK FORWARD TO FRIDAY AND GOING AND GETTING HER, AND THEN SUNDAY TAKING HER HOME WAS LIKE JUST MISERABLE. [JOANNE]: IT GOT TO THE POINT THE LAST EEG SAID HER HEALTH WAS EXTREMELY CRITICAL, THEN MY HUSBAND AND I DECIDED IT’S TIME TO TAKE HER HOME. [TIM]: WE UNDERESTIMATED THE AMOUNT OF WORK AND TIME AND ENERGY AND JUST EVERYTHING THAT HAD TO BE PUT INTO IT. WE JUST WANT TO MAKE SURE WE GIVE HER EVERY CHANCE AT, WHAT SHE HAS FOR THE TIME THAT SHE’S GOING TO BE HERE. [LISA]: THEY ARE JUST TWO PEOPLE THAT REALLY FEEL LIKE THE HOME ENVIRONMENT IS A HEALTHIER ENVIRONMENT FOR HER TO BE IN, AND BRINGING HER HOME SORT OF OPENED UP ALL THESE NEW CHALLENGES, AND SITUATIONS THAT THEY MAY NOT HAVE BEEN PREPARED FOR, BUT THEY WERE WILLING TO STEP UP AND DO IT ANYWAY. IN NEW HAMPSHIRE HEALTHY FAMILIES, WE HAVE AN INTEGRATED TEAM APPROACH THAT WE WORK WITH, SO I’M NOT DOING THINGS BY MYSELF, I HAVE THAT SUPPORT TO GIVE HER THAT CARE, AND PUSH THROUGH TO GET HER THE THERAPIES THAT SHE NEEDS, TO GET HER NURSING SERVICES, TO MAKE SURE THAT SHE GETS THE RIGHT MEDICATIONS, GETS TO THE DOCTORS. [JOANNE]: GRACIE HAS TO SLEEP WITH A HELMET ON, BECAUSE IF SHE THRASHES WITH A SEIZURE, SHE COULD DO MORE BRAIN DAMAGE. SO LISA LED US TO DIFFERENT TYPE OF PEOPLE, AND BECAUSE OF THAT, GRACIE NOW HAS A SAFE BED. AND THIS BED IS ALL PADDED, WHICH HAS LEFT GRACIE SO THAT SHE DOESN’T HAVE TO WEAR HER HELMET AT NIGHT NOW, AND NOW SHE SLEEPS THROUGH THE NIGHT. SHE ALSO HAS A CAR SEAT THAT LISA RECOMMENDED, WHICH IS A HANDICAP CAR SEAT. THIS CAR SEAT HAS ACCESSORIES THAT WILL GROW WITH HER PRETTY MUCH TO AN ADULT. SHE MAKES MY LIFE EASIER WHEN I CAN’T DO THE THINGS THAT I SHOULD DO, LISA WILL GET THINGS DONE. [TIM]: IT’S PEOPLE LIKE LISA THAT GIVE YOU HOPE THAT YOU’RE NOT ALONE, AND THERE ARE PEOPLE OUT THERE THAT WILL HELP YOU. [LISA]: WE WANT TO KEEP OUR MEMBERS HEALTHY, AND FOR GRACIE LYNN, IT’S BEEN A MIRACLE, I MEAN SHE’S COME HOME, AND SHE’S PROGRESSED, AND SHE’S GOT AN AMAZING SUPPORT SYSTEM IN PLACE, SHE’S GOT AMAZING PEOPLE THAT ARE TAKING CARE OF HER, AND SHE’S GOT NEW HAMPSHIRE HEALTHY FAMILIES TO BACK HER UP. [TIM]: IT’S ALL FOR HER BEST CARE AND INTERESTS, IT’S NOT ABOUT THEIR AGENCY OR THEIR COMPANY, IT’S ALL DONE FOR HER. [JOANNE]: TO GET THE SERVICE THAT WE GOT FROM NEW HAMPSHIRE HEALTHY FAMILIES, I AM SO FOREVER GRATEFUL. [TIM]: THANK YOU IS NOT ENOUGH. [MUSIC]

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