Announcements and Items of Interest – Rudy Pozzatti


Male Speaker:
Announcements of items and items of interest. There’s several documents. You can find them
in the ECB under the open session tab. They’re also linked to the agenda on the council web
page. There are three reports from our liaison societies. These are updates from the American
Society of Human Genetics, National Society of Genetic Counselors, and the American College
of Medical Genetics and Genomics. There’s also a policy statement from the American
College of Medical Genetics and Genomics that defines the scope of practice for the specialty
of medical genetics. And if that’s of interest to you, I would recommend it. It’s time for the conflict of interest statement.
So this statement and description of conflicts applies to the applications that will be reviewed
in the closed session. You must leave the meeting room when applications submitted by
your own organization are being individually discussed. In the case of state higher education
or other systems with multiple campuses geographically separated, own organization of the PI is intended
to mean the entire system, except where a determination has been made that the components
are separate organizations for the purpose of conflict of interest. You should avoid situations that could give
rise to charges of conflict of interest, whether real or apparent. For example, you should
not participate in deliberations or actions of any application from or involving your
spouse, your child, a recent student, a recent teacher, professional collaborator with whom
you’ve worked closely, close personal friend, or a scientist with whom you’ve had a longstanding
scientific or personal difference of opinion. The NHGRI staff will determine the appropriate
action, based on recency, frequency, and strength of such associations or interest, either positive
or negative and will instruct you accordingly. In council actions in which you vote on a
block of applications without discussing any individual one, the on block action, your
vote will not apply to any application from any institution fulfilling the criteria and
descriptions of conflict of interest after the [unintelligible]. Please sign the conflict of interest form
and disposal of confidential material form, which are provided at your seats. They’ll
be collected at the end of the meeting. We have one other task to perform before we end
the open session. Male Speaker:
Yes, I will — Male Speaker:
Grover [spelled phonetically]? Male Speaker:
— moderate this, but Rudy’s [spelled phonetically] going to help. So before we draw the open
session of this council meeting to a close, we have one final task, which we delayed until
the afternoon. Usually, we do this first in the morning, but we wanted one other council
member to get here to do this. So September, people have been around, you
know, a long time in council enough years have known that September is parole month
in NIH advisory councils, meaning, that each council member serves a four year term, that
at times might feel like a prison sentence, but we’ve now — but had indeed — it’s time
to get out of jail so to speak. And so, we’ve now concluded that four members
of this council are fully rehabilitated. And it’s time to return them to society or at
least back to the genomics community from whence they came. So with some sadness, but
a great deal of gratitude, we are bidding farewell to four members of our council, three
of which are here. So I’ll do these one at a time. And Rudy has
departing gifts for each of you. So Amy McGuire. Amy is one of two J.D. legal scholars on the
council and is a member of council’s genomics and society working group. Her longstanding
expertise and research ethics and informed consent issues related to genomics research
has served us well, but Amy’s direct involvement in both the production genome sequencing and
clinical genome sequencing activity’s going at Baylor give her deep and well informed
and well respected perspective of the challenges facing large scale genomics and its path to
successful implementation in the clinical setting. This has allowed her to give us valuable
input in many different areas during her years on council. So thank you, Amy, for all you’ve
done and will continue to do for NHGRI. [applause] Next is Tony Monaco. Tony has a long and distinguished
research career in human genetics, but he’s also brought the perspective of a university
leader, in his case, a university presidency to the council of deliberations. His ability
to advise NHGRI on contemporary genetics research activities, coupled with his knowledge and
interest in training and enhancing diversity in universities has made Tony as valued member
of the council. I’ll also note that Tony holds a perfect attendance
record over the past four years, which is truly remarkable when you consider some of
the hellish Boston snowstorms that seem to have aligned with some of our council meetings
over the last two winters. So thank you, Tony. [applause] And last but certainly not least, Carlos Bustamante.
We recruited Carlos to the council over four years ago because of a sophisticated understanding
of population structures, and of genomic variation among and across species. Now, you’d be hard
pressed to find any aspect of genomics research, evolution, or computational biology that Carlos
is not involved in, or keenly interested in. And as an example of that, Carlos is NHGRI’s
representative on the council of council that advises the NIH wide division of program coordination
planning and strategic initiatives, otherwise known as NIH Common Fund. Well, whatever topic under discussion, you’ll
always get an enthusiastic, well informed and good humored opinion from Carlos. So thank
you, Carlos. You will be missed as well. [applause] So not with us today, but is Jim Evans, who’s
the fourth departing member. And we will hold our applause until February, because Jim is
actually going to join us for the February council meeting, traded not coming this time,
it’s coming in February. And so, we’re going to hold, I guess his gifts aren’t even here,
we’re going to hold his gifts and the well crafted paragraph that Rudy prepares for me.
We will hold all of that until — which I added, but Rudy, I want to give due credit
for Rudy helping out. So we’ll hold that. We’ll give that applause
and gifts and paragraphs to Jim when he’s here in February. So service on council is
intellectually engaging. And it’s a certain prestige associated with that role or so we’re
told, but it does also carry some — actually quite a bit of responsibility.
And in the era, especially that this council and these graduating members have faced of
flat funding, which forces agonizing decisions on us that really are not always all that
pleasant to contemplate. So I really am grateful to the three of you as well as Jim for really
helping us through these difficult challenges for contributing thoughtful ideas, for contributing
to the discussion on productive ways. So, again, from all of us at NIHGRI, thank you
very much for your service on our council. So but as Rudy always likes to say, we know
your email address. And we know how to reach you. And we’ll find other ways of continuing
to help — have you help us. Male Speaker:
Consider the peer review opportunities — Male Speaker:
Oh, yes. Male Speaker:
— that are now open to you. Male Speaker:
So and that’s that. So — and with that, I will call to a close the open session of this
advisory council meeting. And we will take a 10 minute break or something? Male Speaker:
Yeah, 10 minutes for them to disconnect the cameras. And then, we’ll reconvene in closed
session. Okay? Male Speaker:
Thank you. [end of transcript]

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